lunargypsie: (Believe Moon)
[personal profile] lunargypsie
This last week after going to my main doctor a month ago, I have seen 2 more new doctors. I am so glad that I have answers after nearly 10 years of medical issues stacking up on each other. You dont know how much of a relief it is to finaly know what is going on and the root cause of things in my medical life.

Tuesdays Doctor: He is a sleep specialest. He wants me to go in for a sleep study, and told me that a few things could happen. I will either need to have a tonsillectomy, and or be put on a c-pap machine. We will see how the sleep study goes. He believes that out of the 4 stages of sleep, I am only getting through stage 1 and 2. These are the two stages that keep you from going crazy. Stages 3 and 4 are stages of sleep that helps your body repair. That being said, He has dignosed me so far with chronic fatigue syndrome which was caused by chronic pain. After the sleep study, I will then seen about the Sleep Apnea. More then likly I do have it, I just have to go through the formailitys of it. He gave me 2 referials to see two other doctors, and put me on Nortriptyline to help me try to get some sleep. or at least that is one of the things this medication is used for.

Wensdays Doctor: After a long talk, a bit of tears, poking and proding and bending in painful ways, he has bluntly said yesterday that I have Fibromyalgia. This has symptoms of chronic fatigue syndrome, and osteo and rheumatoid arthritis which we all know I have. He also told me that I wasnt crazy. For many years now I have been going into the doctors for the current issues I had at the time. Both my main doctor nor I really took a look at the whole picture. we would treat the symptoms as they came, not the root cause of things. So the peices were never put togeather. This doctor put me on a medication called Savella.

I am still on other pain meds too, but now that we know what is going on, we can start a type of treatment that will work better for me then what I have been doing which was hobbling along and putting a bandaid over somthing that needed stiches.

Needless to say, all my bitching, complaining, not able to walk at times, taking at times over 2 hours to get out of bed physicaly, or do anything, started some people to say that I was a hypochondriac, or faking what was going on. I am not. There was a reason why I was feeling the way I was and the way I do now. It has hurt me often times when I hear that someone thinks this of me and that no one would believe me. The doctor asked me when when was the last time I enjoyed shopping? he also asked when was the last time I could walk around costco with out hurting? He make me feel like I wasnt crazy, that I wasnt alone, and he know excatualy what I was going through. He even got my daugher to give answers about how I feel, how when she hugs me sometimes I start to cry in pain.

I have been not talking much online since September. I was put down so hard that I started to feel that maybe some of these people were right. Maybe it was all in my head. Now that I started this round of doctors visits, will people start to believe me?

Hopefuly I will be up to par by the Convention so I do not let people down.

I would like to thank all the people that HAVE been supportive and those that believed in me.

Date: 2010-02-25 02:01 pm (UTC)
From: [identity profile]
very gentle hugs. Sounds like rough times. But hopefully you'll start to figure some things out now.

Date: 2010-02-25 02:56 pm (UTC)
From: [identity profile]
by the by, getting my sleep apnea diagnosed and treated has made for some real improvement in a lot of my life!

Date: 2010-02-25 02:19 pm (UTC)
From: [identity profile]
I'm here, as always. *hugs*


Date: 2010-02-25 03:32 pm (UTC)
From: [identity profile]
I am so glad you have found things out and gotten a proper diagnosis.

My wife has fibro and it took her a while to have a dr take her seriously. I am going through the whole 'running the guantlet' thing trying to be diagnosed etc.

I had a heck of a time getting a dr to take the chronic fatigue seriously.

I have my fingers crossed that with these diagnosis you will find a measure of peace and will be able to sleep properly and be in less pain.

I must admit i am envious a little that you are managing to find something close to closure by being diagnosed.

the troll


Date: 2010-02-25 04:05 pm (UTC)
From: [identity profile]
Welcome to the world of CPAP... Been on the machine for close to 10 years.

Date: 2010-02-25 04:09 pm (UTC)
From: [identity profile]
I'm so glad you're on the path to feeling better! I'd be interested to hear your results, how those medications do for you. I'm always wanting to know more about treatments for cfs/fms.

Date: 2010-02-25 05:19 pm (UTC)

Date: 2010-02-25 05:19 pm (UTC)
From: [identity profile]

Hopefully now that you have some answers you can start to feel better.

Date: 2010-02-25 06:02 pm (UTC)
solarbird: (Default)
From: [personal profile] solarbird
Figuring things out is always a huge relief. Good luck with the meds, too. Housemate Paul has had really big benefits out of his CPAP machine, going from stage 1-2 only to stage 3-4 and it's been a big help, but it took six months or more to get it all set up right for him.

Date: 2010-02-25 07:24 pm (UTC)
From: [identity profile]
*Tender Hugs* I know you've been in a lot of pain lately and I am glad that you have finally gotten the medical backup you need. I have never though of you as a hypochondriac. *LOVE*

Date: 2010-02-26 01:53 am (UTC)
From: [identity profile]
So glad to hear that you have found some doctors who are willing to REALLY help you put the puzzle pieces together. That is awesome. Best of luck with whatever your next steps are!

Date: 2010-02-26 03:33 am (UTC)
From: [identity profile]
Knowing is always better than not knowing. I'm glad you're getting useful answers.

Date: 2010-02-26 04:27 am (UTC)
From: [identity profile]
At work, we regularly print books for for IASP, the International Association for the Study of Pain. Most of it is incomprehensible to me, but they have a whole tome of studies from the four corners of the globe about how women who suffer from Fibromyalgia are rarely diagnosed with it because most doctors are prone to dismiss female complaints of pain and fatigue. They talk a lot about how their doctor's incredulity, and that of those around them, can often make the symptoms worse.

I'm glad you found a sensible doctor who is objective. Now you can finally move forward.

Date: 2010-02-26 05:45 pm (UTC)
From: [identity profile]
Thank you for posting this.

Everything I have learned agrees with this: Fibromyalgia symptoms are ignored or dismissed by the largely male medical professionals. Those with the symptoms are the least capable of fighting for the diagnosis.

Willow: I am very glad that you are getting answers that are helping you. I've been sad not to see you participate, and hope that this will change.

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